Wednesday, March 19, 2014

The difference of a few days.

Just wanted to post a quick update with a photo to show how quickly the skin changes when you're undergoing TSW.

Compare this photo to my photos from just a few days ago when I was flaring...

Not nearly as bad!  Woohoo (for now at least!)!

Sunday, March 16, 2014

Rough, itchy week.

I haven't updated in a while primarily because things have, for the most part, been going pretty well.  For the past month, I've been able to live my life mostly normally with moderate comfort.  I haven't had to call off of work or cancel any plans and I haven't felt unwell enough to let my skin stop me from doing the things that I've wanted to do.

In comparison to how well I've been doing recently, I did, however, have a bit of a rough week this past week.  The itching, which had been fairly moderate recently, came back with a vengeance this past Monday and is still going.  Despite the itching, my skin looked pretty good for most of the week but really took a turn for the worse on Friday and Saturday (yesterday).  My neck/chest area has broken out in the same little bumps that I've experienced in varying degrees all along.  This time, however, the pus wasn't the same clear liquid that I had before.... it's more of a solid (like acne).  Gross.  WHY?!

Yesterday was possibly the worst day to look & feel so awful--I had a gig playing piano for a Purim celebration down the street.  I was front-and-center before the eyes of hundreds of strangers.  Ooooph.  I covered my neck with a big scarf to make my rash less visible and that helped me feel more comfortable, emotionally. 

Here's a few pictures from yesterday before I left for the gig:

Still trying to dress well despite the skin.

When I got home, I immediately started a Dead Sea Salt bath and hopped in the tub.  It felt so soothing after a long day.

So far today, I'm hanging in there.  I'm fasting this morning-afternoon to see if it helps my skin at all.  I also drank some edible clay to help detox a little bit.  Hoping these things will help relieve my current symptoms somewhat.  It's good for the body, anyway, so it's a healthy thing to do regardless.

This really makes me wonder about flares.  Is it just a natural cycle that happens regardless of anything?  Is it food related?  Is it related to the menstrual cycle at all?  These are questions that everyone undergoing TSW deals with.  Why are there no real answers yet?!

At any rate, I'm still very happy to be off of steroids.  At least now I can try to listen to my body's natural signals and figure out what it needs on my own.  Just hoping that this current thing settles back down a little bit. 

Sunday, March 2, 2014

No more restaurants for a while.

Today I went out to lunch with some friends; it was so nice!

Sadly, however, I'm noticing a trend: every time I eat food at a restaurant my skin becomes very hypersensitive within an hour of eating and the little bumps on my face/neck/chest become inflamed and BURN!

Perhaps it could be the oil that they cook the food in?  I just can't say that I understand it at all, but it's happened too many times for it to be coincidence.  I'm just now realizing.

Sometimes the burning only seems to effect me for a few hours after eating, but sometimes it lasts for a few days.  I hope this isn't a long one.  I was just starting to recoup from eating out last Tuesday. :(

No more restaurants for a while.  Just good ol' home cooking for me.